The Inner Voice of a Thirteen-Year-Old Boy with Autism
Written by Naoki Higashida when he was only thirteen, this remarkable book, a New York Times and Sunday Times bestseller, offers a rare and intimate look into the beautiful, the challenging, and the complex mind of an autistic child.
Author:
Naoki Higashida
Published Year:
2013-08-27
Have you ever felt utterly alone, even in a crowded room? Like you're speaking a different language that no one else understands?
Naoki Higashida, a thirteen-year-old boy with nonverbal autism, illuminates with incredible clarity in his book, "The Reason I Jump," the reality for many individuals with autism. The book offers a profound and deeply moving glimpse into the autistic mind. It's not just a book for parents or educators; it's a book for anyone who wants to understand the human experience in its full spectrum.
Naoki explains that his inability to speak fluently isn't due to a lack of thoughts or feelings. It's more like his brain and his mouth are disconnected. He describes it as trying to control a faulty robot – the commands are there, but the execution is erratic and unpredictable. This is crucial to understand because it shifts the focus from assuming someone *can't* communicate to recognizing that they communicate *differently*.
Naoki emphasizes the importance of patience. Give the person time to express themselves, even if it's slow or unconventional. Don't interrupt or finish their sentences. Pay attention to their body language, their facial expressions, and the context of the situation.
Naoki describes experiencing sensory overload, where everyday sounds, sights, and textures can become overwhelming and even painful. He explains why he might cover his ears in a noisy environment – it's not that he dislikes the noise itself, but that his brain processes it differently, amplifying it to an unbearable level. "The Reason I Jump" details these sensory sensitivities.
Naoki explains that his perception of time isn't linear. Instead, it's more like a collection of individual moments, like dots scattered on a page. He might vividly remember a seemingly insignificant event from years ago, while struggling to recall what he had for breakfast. This can make it difficult for him to follow instructions or understand cause and effect. "The Reason I Jump" helps readers understand this different perception.
One of the most poignant aspects of the book is Naoki's deep desire for connection. He expresses a longing to be understood, to be accepted, and to have meaningful relationships. He writes about the pain of feeling isolated and the frustration of not being able to communicate his thoughts and feelings effectively. "The Reason I Jump" highlights this universal human need.
The author suggests that we should not judge autistic behaviors by neurotypical standards. What may seem "odd" or "inappropriate" to us might be a perfectly logical response to a sensory overload or a communication difficulty. "The Reason I Jump" encourages understanding and acceptance.
What surprised me most about "The Reason I Jump" is the profound sense of hope and resilience that permeates Naoki's writing. Despite the challenges he faces, he maintains a positive outlook and a deep appreciation for the beauty of the world around him. "The Reason I Jump" is a testament to the power of communication, the importance of empathy, and the enduring strength of the human spirit.
First, let's look at communication. Naoki explains that his inability to speak fluently isn't due to a lack of thoughts or feelings.
Naoki explains that his inability to speak fluently isn't due to a lack of thoughts or feelings. It's more like his brain and his mouth are disconnected. He describes it as trying to control a faulty robot – the commands are there, but the execution is erratic and unpredictable.
He uses an alphabet grid, painstakingly pointing to letters to spell out words, a method that requires immense concentration and effort. Imagine trying to have a conversation where every single word has to be physically constructed, letter by letter. It's exhausting, frustrating, and often leads to misinterpretations.
This is a glimpse into Naoki's everyday experience, except that for him, there's no "going home" to a place where communication is easy. He's constantly navigating a world that doesn't understand his language. This is crucial to understand because it shifts the focus from assuming someone *can't* communicate to recognizing that they communicate *differently*.
Naoki emphasizes the importance of patience. Give the person time to express themselves, even if it's slow or unconventional. Don't interrupt or finish their sentences. The book, "The Reason I Jump", stresses the need for patience in communication.
Next, let's explore the sensory world of autism. Naoki describes experiencing sensory overload, where everyday sounds, sights, and textures can become overwhelming and even painful.
Naoki describes experiencing sensory overload, where everyday sounds, sights, and textures can become overwhelming and even painful. He explains why he might cover his ears in a noisy environment – it's not that he dislikes the noise itself, but that his brain processes it differently, amplifying it to an unbearable level.
Imagine the sound of a dripping faucet, but amplified a hundred times. Or the feeling of a scratchy tag on your shirt, but magnified to the point of feeling like sandpaper against your skin. These examples help illustrate the intensity of sensory experiences for individuals with autism, as described in "The Reason I Jump".
He describes how seemingly innocuous things, like the flickering of fluorescent lights or the hum of a refrigerator, can trigger intense discomfort. This is why seemingly "odd" behaviors, like rocking, flapping hands, or repeating phrases, can actually be coping mechanisms, ways to self-soothe and regulate sensory input.
Be aware of the environment. Are there bright lights, loud noises, or strong smells that might be overwhelming? Offer alternatives if possible. Small adjustments can make a huge difference in creating a more comfortable and inclusive environment, a key takeaway from "The Reason I Jump".
Now, let's talk about time and memory. Naoki explains that his perception of time isn't linear, like a continuous flowing river.
Naoki explains that his perception of time isn't linear, like a continuous flowing river. Instead, it's more like a collection of individual moments, like dots scattered on a page.
He might vividly remember a seemingly insignificant event from years ago, while struggling to recall what he had for breakfast. This is because his memory isn't organized chronologically, but rather by the emotional impact of the experience.
This can make it difficult for him to follow instructions or understand cause and effect. Understanding this difference, as highlighted in "The Reason I Jump", is crucial for effective interaction.
Instead of assuming they're being forgetful or disobedient, we can recognize that their memory works differently. Try this: when giving instructions, break them down into small, clear steps. Use visual aids, like pictures or checklists, to help them remember the sequence. "The Reason I Jump" advocates for this mindful approach.
One of the most poignant aspects of the book is Naoki's deep desire for connection.
One of the most poignant aspects of the book is Naoki's deep desire for connection. He expresses a longing to be understood, to be accepted, and to have meaningful relationships.
He writes about the pain of feeling isolated and the frustration of not being able to communicate his thoughts and feelings effectively. This highlights a core human need, often overlooked in individuals with autism. "The Reason I Jump" brings this need to the forefront.
We might assume that because someone doesn't express their emotions in a typical way, they don't have them. But Naoki's words shatter that assumption. He feels deeply, he cares deeply, and he yearns for connection just like anyone else.
Naoki emphasizes the importance of empathy. Try to put yourself in his shoes. Imagine what it would be like to experience the world as he does. The more we can understand his perspective, the better equipped we'll be to connect with him and others like him on a deeper level. This is a central message of "The Reason I Jump".
The author suggests that we should not judge autistic behaviors by neurotypical standards.
The author suggests that we should not judge autistic behaviors by neurotypical standards. What may seem "odd" or "inappropriate" to us might be a perfectly logical response to a sensory overload or a communication difficulty.
For example, a child who is flapping their hands might be trying to regulate their sensory input, not trying to be disruptive. A person who avoids eye contact might be overwhelmed by the intensity of direct gaze, not trying to be rude. "The Reason I Jump" provides numerous such examples.
The key is to look for patterns and to understand the context. Is the behavior consistent across different situations? Does it seem to be triggered by specific sensory stimuli or communication challenges? Does the person seem distressed or uncomfortable?
Here's what to do instead of reacting with judgment: take a moment to observe, to listen, and to try to understand the underlying cause of the behavior. "The Reason I Jump" calls for this shift in perspective.
What surprised me most about "The Reason I Jump" is the profound sense of hope and resilience that permeates Naoki's writing.
What surprised me most about "The Reason I Jump" is the profound sense of hope and resilience that permeates Naoki's writing. Despite the challenges he faces, he maintains a positive outlook and a deep appreciation for the beauty of the world around him.
He finds joy in nature, in music, and in the simple act of connecting with others, even if it's just for a brief moment. This resilience is a powerful message throughout "The Reason I Jump".
This changes how we should approach not only autism, but any challenge in life. It reminds us that even in the midst of difficulty, there is always hope, there is always beauty, and there is always the possibility of connection.
"The Reason I Jump" is more than just a book about autism; it's a book about the human condition. It's a testament to the power of communication, the importance of empathy, and the enduring strength of the human spirit. Naoki's voice, though filtered through the challenges of autism, is clear, eloquent, and deeply moving.
People with autism react to sights, sounds, and other sensory experiences in ways that are different to those of non-autistic people. We’re super-sensitive to some things, and totally insensitive to others. This makes life very complicated, and it’s why our behavior can seem pretty strange to you!
When I’m jumping, it’s as if my feelings are going upward to the sky. Really, my urge to be swallowed up by the sky is the reason for my jumping. By jumping, we can feel the true weight of our bodies, and that weight lets us confirm that, yes, we are alive, we are human beings now. It’s a feeling of elation, and it makes us want to jump even higher and higher!
But if you’re always worrying about what other people are thinking, you can’t ever be yourself. Other people, they’re not me, and they’re never going to be me, so it’s a waste of time to worry about what they think. I just get on with it!
The hardest ordeal for us is the idea that we are causing trouble for other people. We can put up with our own hardships okay, but the thought that our lives are the source of other people’s unhappiness, that’s plain unbearable.
Everyone has a heart. Sometimes you just can’t see that it’s there. But it is.
Time for people with autism is a series of dots, not a line. Each dot is a separate, self-contained event. We can’t connect the dots, and we can’t see the line.
We may look calm on the outside, but inside we’re struggling. We’re fighting a battle to stay in control of our bodies, and sometimes we lose.
Please, never give up on us. We need your help. We may never be able to speak like you, or live like you, but we are alive, and we are human. We have feelings, just like you. We want to be loved, just like you. We want to be happy, just like you.
By
Elizabeth Catte
By
Bruce Weinstein
By
Nathaniel Philbrick
By
Robin Wall Kimmerer
By
Shari Franke
By
Ezra Klein
By
Flatiron Author to be Revealed March 2025
By
Julie Holland M.D.
By
Richard Cooper
By
Brian Tracy